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National Institutes of Health HIPAA Privacy Rule - Information for Researchers
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HIPAA Privacy Rule Booklet for Research

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Other Federal Agencies

Agency for Healthcare Research and Quality (AHRQ)
AHRQ sponsors and conducts research that provides evidence-based information on health care outcomes; quality; and cost, use, and access. The information helps health care decisionmakers—patients and clinicians, health system leaders, purchasers, and policymakers—make more informed decisions and improve the quality of health care services.

Report on Data Privacy
National Academy Press (Printable version)

Centers for Disease Control and Prevention (CDC)
CDC is the lead Federal agency for protecting the health and safety of people—at home and abroad—providing credible information to enhance health decisions and promoting health through strong partnerships. CDC serves as the national focus for developing and applying disease prevention and control, environmental health, and health promotion and education activities designed to improve the health of the people of the United States.

Centers for Disease Control and Prevention (CDC) HIPAA Resources

Centers for Medicare and Medicaid Services (CMS)
Centers for Medicare and Medicaid Services' (formerly HCFA) official HIPAA site provides general information on Administrative Simplification, the Transactions and Code Sets, and HIPAA-related information on Medicare and Medicaid.

Food and Drug Administration (FDA)
The Food and Drug Administration's mission is to promote and protect public health by helping safe and effective products reach the market in a timely way, and monitoring products for continued safety after they are in use. Our work is a blending of law and science aimed at protecting consumers.

Health Resources and Services Administration (HRSA)
Health Resources and Services Administration's mission is to improve and expand access to quality health care. HRSA assures the availability of quality health care to low income, uninsured, isolated, vulnerable and special needs populations and meets their unique health care needs.

HIPAA Privacy Rule Resource Guide for HIV Services Providers and the Health Resources and Services Administration's HIV/AIDS Bureau Staff
Plain Language Principals and Thesaurus for Making HIPAA Privacy Notices More Readable
Privacy Rule and Telemedicine Providers

Indian Health Service (IHS)
The Indian Health Service provides a comprehensive health services delivery system for American Indians and Alaska Natives with opportunity for maximum tribal involvement in developing and managing programs to meet their health needs. The goal of IHS is to ensure that comprehensive, culturally acceptable personal and public health services are available and accessible to all American Indian and Alaska Native people. The foundation of IHS is to uphold the Federal Government obligation to promote healthy American Indian and Alaska Native people, communities, and cultures, and to honor and protect the inherent sovereign rights of tribes.

Indian Health Service (IHS) HIPAA Resources
Indian Health Service (IHS) Electronic Reading Room

National Institutes of Health (NIH)
The National Institutes of Health is the steward of medical and behavioral research for the Nation. Its mission is science in pursuit of fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to extend healthy life and reduce the burdens of illness and disability.

National Library of Medicine

Office for Civil Rights (OCR)
The Office for Civil Rights is responsible for implementing and enforcing the privacy regulation. This site provides policy guidance and viewing of the Final Privacy Regulation in various formats. This site also gives the Final Modifications to the Privacy Rule published in the Federal Register on August 14, 2002, a press release, and a fact sheet.

Office for Civil Rights (OCR) HIPAA Resources

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Office of the Assistant Secretary for Planning and Evaluation (ASPE)
The Assistant Secretary for Planning and Evaluation advises the Secretary of Health and Human Services on policy development in health, disability, human services, and science, and provides advice and analysis on economic policy. ASPE leads special initiatives; coordinates the Department's evaluation, research, and demonstration activities; and manages cross-Department planning activities such as strategic planning, legislative planning, and review of regulations. Integral to this role, ASPE conducts research and evaluation studies, develops policy analyses and estimates the cost and benefits of policy alternatives under consideration by the Department or Congress. This site offers calendars, proposed rules, implementation timetables, news, meeting minutes, full-text regulatory documents, and FAQs on HIPAA.

Office of the Assistant Secretary for Planning and Evaluation (ASPE) Frequently Asked Questions

Office of Human Research Protections (OHRP)
The Office of Human Research Protections monitors programs for the protection of human subjects at more than 4,000 HHS-funded universities, hospitals, and other medical and behavioral research institutions in the United States and abroad.

Institutional Review Board

Substance Abuse and Mental Health Services Administration (SAMHSA)
The Substance Abuse and Mental Health Services Administration is the Federal agency charged with improving the quality and availability of prevention, treatment, and rehabilitative services in order to reduce illness, death, disability, and cost to society resulting from substance abuse and mental illnesses.

Substance Abuse and Mental Health Services Administration (SAMSHA) HIPAA Resources

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We have provided non-Federal links that have information site users may find of interest. The U.S. Department of Health & Human Services (HHS) does not necessarily endorse the views expressed or the facts presented on any of these sites. No endorsement by the HHS of any of the products, organizations, or information provided from any of these linked resources is intended or should be inferred.

Department of Health and Human Services National Institutes of Health USAGov The HIPAA Privacy Rule