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National Institutes of Health HIPAA Privacy Rule - Information for Researchers
This website is currently in the process of being updated. For guidance on the HIPAA Privacy Rule in research, please see: https://www.hhs.gov/hipaa/for-professionals/special-topics/research/index.html
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Slide Presentation on the Privacy Rule and Research


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What is Covered?

Protected Health Information (PHI) = Covered Entity + Health information + Identifier

  • Transmitted or maintained in any form (paper, oral, electronic, forms, web-based, etc.).
  • Decedents’ information included.
  • Does not include de-identified health information or biological tissue and certain other exceptions (e.g., employment records or education records covered by FERPA).


Department of Health and Human Services National Institutes of Health USAGov The HIPAA Privacy Rule