HIPAA Privacy Rule and Its Impacts on Research

This website is currently in the process of being updated. For guidance on the HIPAA Privacy Rule in research, please see: https://www.hhs.gov/hipaa/for-professionals/special-topics/research/index.html

Educational Materials

Clinical Research

Authorizations

Institutional Review Boards

Privacy Boards

Information for Patients

HIPAA Privacy Rule Booklet for Research

Health Services Research and the HIPAA Privacy Rule

Research Repositories, Databases

Overview

The Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule is the first comprehensive Federal protection for the privacy of personal health information. Research organizations and researchers may or may not be covered by the HIPAA Privacy Rule. This website provides information on the Privacy Rule for the research community.

HIPAA Resources

The Privacy Rule - Final Modification (PDF/TXT)

Office for Civil Rights HIPAA Information (Medical Privacy Home Page)

Office for Civil Rights HIPAA Guidance (PDF/RTF)

Office for Civil Rights Summary of the HIPAA Privacy Rule (PDF/RTF)

Center for Medicare & Medicaid Services HIPAA Information (Covered Entity Decision Tool)
Final HIPAA Enforcement Rule (PDF/TXT)

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Site last updated: 02/02/2007