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National Institutes of Health HIPAA Privacy Rule - Information for Researchers
This website is currently in the process of being updated. For guidance on the HIPAA Privacy Rule in research, please see: https://www.hhs.gov/hipaa/for-professionals/special-topics/research/index.html
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Slide Presentation on the Privacy Rule and Research


Slide 19:
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Option 2: Limited Data Set with Data Use Agreement

  • The Privacy Rule permits limited types of identifiers to be released for research with health information (referred to as a Limited Data Set).
  • Limited Data Sets can only be used and released in accordance with a Data Use Agreement between the covered entity and the recipient.

Department of Health and Human Services National Institutes of Health USAGov The HIPAA Privacy Rule